Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionGoogle News — AlbinismWhat The Hindu's albinism explainer gets right
The Hindu published a detailed primer on albinism, covering genetics, vision, skin risk, and the social challenges faced by people with the condition.
Human RightsGoogle News — AlbinismHRW report finds deep economic exclusion in Malawi
A Human Rights Watch report documents how people with albinism in Malawi face barriers to employment, education, and basic services. The findings call for urgent government action.
Health & Sun ProtectionGoogle News — AlbinismWHO adds sunscreen for albinism to essential medicines list
The World Health Organization has added high-SPF sunscreen to its Essential Medicines List, recognising UV protection as a medical necessity for people with albinism.
Real StoriesGoogle News — AlbinismOscar-shortlisted film centres a boy with albinism
Simon Panay's 'The Boy With White Skin' reached the Oscar shortlist by weaving albinism awareness into a story shaped by mysticism and lived experience.
Health & Sun ProtectionGoogle News — AlbinismCataract surgery offers new option for oculocutaneous albinism
A case study published in Via Medica Journals examines standard lens implant surgery as a practical alternative for people with oculocutaneous albinism.
Real StoriesGoogle News — AlbinismShaiboy on Afrobeats, albinism, and working twice as hard
Nigerian artist Shaiboy speaks about navigating the music industry with albinism, and what it takes to build a career on his own terms.
Real StoriesGoogle News — AlbinismAderopo Afolabi uses photography to reframe albinism
Nigerian photographer Aderopo Afolabi is using portraiture to challenge how albinism is seen and represented in West Africa.
Human RightsGoogle News — AlbinismNigeria's millions with albinism remain largely invisible
An estimated two million Nigerians live with albinism, yet many face daily discrimination, limited healthcare access, and social exclusion. LEADERSHIP Newspapers reports.
Health & Sun ProtectionGoogle News — AlbinismCRISPR gene editing accidentally triggers albinism in sugarcane
Researchers found that CRISPR/Cas9 editing caused unintended albinism in sugarcane plants by disrupting a pigmentation gene. The finding highlights a precision problem with a widely used genetic tool.
Human RightsGoogle News — AlbinismJune 13: International Albinism Awareness Day observed globally
Each year on June 13, communities around the world mark International Albinism Awareness Day, established by the United Nations in 2015.
Health & Sun ProtectionGoogle News — AlbinismUJ brings free eye care to people with albinism
The University of Johannesburg ran a clinical outreach providing eye examinations and corrective lenses to people with albinism in South Africa.
Human RightsGoogle News — AlbinismNigeria's First Lady calls for albinism inclusion
On World Albinism Awareness Day, Nigeria's First Lady urged protection and inclusion for people with albinism, citing persistent discrimination and unmet needs.
Human RightsGoogle News — AlbinismPeople with albinism in Liberia report government neglect
Community members in Liberia say they lack access to basic health services, sun protection, and legal recognition. The New Dawn Liberia reported their accounts.
Human RightsGoogle News — AlbinismFiji prepares to mark International Albinism Awareness Day
Communities across Fiji are gathering to observe International Albinism Awareness Day on 13 June, bringing visibility to people with albinism in the Pacific region.
Real StoriesGoogle News — AlbinismNigeria hosts its first pageant for people with albinism
A new pageant in Nigeria centres people with albinism in a national conversation about beauty and representation. The event is reported to be the first of its kind in the country.
Myths & FactsGoogle News — AlbinismSkin bleaching is not albinism, doctors clarify
A Ghanaian dermatologist's claim that bleaching causes 'self-induced albinism' has drawn attention — and requires careful correction for the albinism community.
Human RightsGoogle News — AlbinismCalls grow to end discrimination against people with albinism
Advocates across the Pacific are pressing for stronger protections as discrimination against people with albinism remains widespread and largely unaddressed.
Education & InclusionGoogle News — AlbinismSchool ordered to pay after rejecting boarding pupil
A Ugandan school has been ordered to pay fees after refusing a pupil with albinism a place in its boarding section. The case marks a rare accountability moment for disability discrimination in education.
Real StoriesGoogle News — AlbinismDaniella Boima Garrick wins first Miss Albinism Africa
The Sierra Leonean contestant took the inaugural title at a pan-African pageant created to celebrate women with albinism on their own terms.
Human RightsGoogle News — AlbinismUN expert documents albinism challenges across Pakistan
A UN independent expert has identified barriers facing people with albinism in Pakistan, including discrimination, limited healthcare access, and gaps in legal protection.