Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyVisible light triggers pigmentation differently across skin types
A Journal of Investigative Dermatology study found visible light causes pigmentation in darker skin types but redness in lighter ones — a distinction relevant to albinism research.
Health & Sun ProtectionJournal of Investigative DermatologyOxidative stress study reveals potential CTCL treatment target
New research in the Journal of Investigative Dermatology identifies a distinct oxidative stress profile in cutaneous T-cell lymphoma, pointing toward a possible therapeutic vulnerability.
Human RightsAllAfrica — AlbinismSouth Africa's illegal initiation schools face renewed scrutiny
Authorities in South Africa have moved against illegal initiation schools, where people with albinism face documented risks of harm and exploitation.
Health & Sun ProtectionAllAfrica — AlbinismNigeria moves to expand cancer care funding
The Nigerian government has introduced measures to make cancer treatment more affordable, though costs remain out of reach for many patients, according to officials.
Health & Sun ProtectionJournal of Investigative DermatologyImmune checkpoint protein studied across inflammatory skin diseases
Researchers examined how a protein called VISTA behaves differently across skin conditions. The findings may point toward new treatment strategies for chronic inflammation.
Human RightsAllAfrica — AlbinismSouth Africa's deportation drives interrupt critical medical treatment
People with albinism and other migrants removed mid-treatment face lasting health risks, Daily Maverick reports. Access to sun protection and dermatology care is among what is lost.
Africa FocusAllAfrica — AlbinismZimbabwean migrants in South Africa fear losing healthcare
Zimbabwean immigrants in Louis Trichardt report being turned away from clinics, with some told their chronic medication will no longer be dispensed.
Health & Sun ProtectionAllAfrica — AlbinismGlobal cancer cases could reach 35 million by 2050
A new WHO report warns that annual cancer cases worldwide could nearly double by 2050 without urgent improvements in prevention, diagnosis, and treatment.
Africa FocusAllAfrica — AlbinismMalawi's doctor shortage leaves 20 million underserved
Malawi has roughly 600 doctors for a population of 20 million. The crisis has direct consequences for people with albinism who depend on specialist care.
Human RightsAllAfrica — AlbinismLimpopo mother says womb removed without her consent
A young South African mother with albinism says her uterus was removed during childbirth surgery without her knowledge. Her account raises serious questions about informed consent in public healthcare.
Health & Sun ProtectionAllAfrica — AlbinismLiberia urged to build regional teaching hospitals
A health conference has called on Liberia's government to invest in specialist medical education and regional teaching hospitals as part of a long-term health strategy.
Health & Sun ProtectionAllAfrica — AlbinismMozambique health chief urges Africa to invest in science
Eduardo Samo Gudo, head of Mozambique's National Institute of Health, called on African nations to stop depending on wealthier countries for medicines and diagnostics.
Education & InclusionAllAfrica — AlbinismGambia's volunteers are reshaping disability inclusion
Community volunteers and schools in the Gambia are working to connect mental health with disability awareness, shifting how communities talk about difference.
Real StoriesGoogle News — AlbinismA diagnosis of one in 20,000
A family in the Australian Border region shares what it means to raise a child with albinism — from the first diagnosis to daily life.
Health & Sun ProtectionJournal of Investigative DermatologyAI tool estimates melanoma depth without skin biopsy
A deep learning model trained on reflectance confocal microscopy images can classify melanoma and estimate Breslow depth non-invasively, the Journal of Investigative Dermatology reported.
Health & Sun ProtectionAllAfrica — AlbinismKenya's SHA to cut payments to clinics that withhold medicines
Kenya's Social Health Authority will reduce reimbursements to clinics that fail to dispense prescribed medicines, aiming to close gaps in primary care access.
Human RightsOHCHR — Independent Expert on AlbinismShadow report examines disability rights in Zambia
A shadow report submitted to the UN disability rights committee raises concerns about protections for people with albinism in Zambia.
Human RightsAllAfrica — AlbinismAU chair calls for action beyond albinism commitments
African Union Commission Chairperson Mahmoud Ali Youssouf has urged member states to move from political promises to concrete implementation on health.
Africa FocusAllAfrica — AlbinismAfrica's health security gaps persist despite recent progress
A new index finds African nations have strengthened health infrastructure, but funding has not kept pace with the improvements made.
Health & Sun ProtectionAllAfrica — AlbinismCompounded medicines in South Africa raise safety questions
A court case has exposed gaps in how South Africa regulates medicines made outside standard factory conditions. Researchers argue existing oversight may not be enough.