Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsGoogle News — AlbinismSouth Africa marks International Albinism Awareness Day 2024
The South African government recognised International Albinism Awareness Day on 13 June 2024, drawing attention to the rights and dignity of people with albinism.
Health & Sun ProtectionGoogle News — AlbinismNigeria's First Lady calls for albinism health access
On International Albinism Awareness Day 2026, Nigeria's First Lady publicly called for greater protection and healthcare access for people with albinism across the country.
Education & InclusionGoogle News — AlbinismGhana universities mark Albinism Awareness Day in Kpong
Ensign Global University and Engage Now Africa held a community commemoration in Kpong, Ghana, to mark International Albinism Awareness Day.
Myths & FactsGoogle News — AlbinismNamibian outlet challenges curse myth around albinism
A report from Namibia's New Era Live confronts the persistent belief that albinism is a curse, pushing back on stigma affecting daily life.
Health & Sun ProtectionGoogle News — AlbinismOne in 700 iTaukei people in Fiji has albinism
A new figure from Fiji places albinism prevalence among the iTaukei population at roughly one in 700 — far above the global average.
Education & InclusionGoogle News — AlbinismEnsign Global University marks Albinism Awareness Day
The Ghanaian university held an event to mark International Albinism Awareness Day, joining global efforts to build understanding of albinism.
Human RightsGoogle News — AlbinismSouth Africa calls communities to end albinism discrimination
The Department of Social Development marked Albinism Awareness Day by urging South Africans to challenge discrimination in their own communities. The call came ahead of International Albinism Awareness Day on 13 June.
Human RightsGoogle News — AlbinismPeople with albinism push for public sector jobs in Uganda
Advocates in Uganda are calling on the government to open more public sector roles to people with albinism, citing persistent exclusion from formal employment.
Health & Sun ProtectionGoogle News — AlbinismNigeria launches skin cancer screening for people with albinism
NICRAT has opened dedicated skin cancer screening at three centres across Nigeria, targeting a community at significantly higher risk from UV exposure.
Health & Sun ProtectionGoogle News — AlbinismLiving with albinism in the Balkans
A person with albinism in the Balkans describes sun exposure that causes bleeding skin and the daily experience of social avoidance. Their account surfaces a community rarely heard from.
Human RightsGoogle News — AlbinismNigeria launches campaign to promote albinism dignity
A new campaign in Nigeria aims to challenge discrimination and affirm the rights of people with albinism. Details remain limited but the initiative marks a public step toward visibility.
Health & Sun ProtectionGoogle News — AlbinismSanlamAllianz donates 3,900 sun hats in Namibia
The insurer distributed sun hats to people with albinism across Namibia, addressing a gap in everyday UV protection for a community at high skin cancer risk.
Africa FocusGoogle News — AlbinismEswatini's cultural leaders take on albinism discrimination
Traditional leaders in Eswatini are actively challenging the beliefs that put people with albinism at risk. A new analysis examines what that leadership looks like in practice.
Human RightsGoogle News — AlbinismNigerians with albinism call for inclusion, not pity
Activists and community members in Nigeria are pushing for structural change — access, representation, and dignity — over charitable sympathy.
Health & Sun ProtectionGoogle News — AlbinismAbuja outreach brings care to people with albinism
The Albinism Association of Nigeria called for sustained support as a medical outreach in Abuja provided health services to the local albinism community.
Human RightsGoogle News — AlbinismAttacked in Africa, fitted with prosthetics in New Jersey
People with albinism who lost limbs in ritual attacks across sub-Saharan Africa have received prosthetic arms through a New Jersey-based programme.
Health & Sun ProtectionGoogle News — AlbinismA new OCA2 mutation identified in genetic case report
Researchers have documented a previously unreported genetic mutation linked to oculocutaneous albinism type 2, adding detail to how OCA2 is understood at the molecular level.
Africa FocusGoogle News — AlbinismTanzania sets aside Sh1.9bn for albinism skin oil
The Tanzanian government has allocated 1.9 billion shillings for protective skin oil for people with albinism, alongside new oversight measures.
Education & InclusionAllAfrica — AlbinismUganda health experts warn against traditional remedy delays
In Ntungamo District, health experts say families turning to traditional remedies for misdiagnosed conditions are causing avoidable child deaths.
Africa FocusAllAfrica — AlbinismMalawi's water and sanitation reforms stall under funding pressure
Senior officials warn Malawi must move faster on water and sanitation targets. People with albinism, who depend on clean water for sun protection routines, face compounded risk.