Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesOHCHR — Independent Expert on AlbinismDr Murray Brilliant on living with albinism and science
Geneticist Dr Murray Brilliant has spent decades studying pigmentation — and has albinism himself. The UN's Independent Expert profile offers a rare self-portrait.
Real StoriesOHCHR — Independent Expert on AlbinismA pharmacist in Chile lives with albinism on her terms
Mafalda Soto Valdés works as a pharmacist in Chile. Her account, published by the UN Independent Expert on Albinism, describes the daily adjustments her condition requires.
Human RightsOHCHR — Independent Expert on AlbinismUN expert calls for inputs on Madagascar albinism mission
The UN Independent Expert on albinism visited Madagascar in late September 2022, gathering evidence on the rights of people with albinism there.
Human RightsOHCHR — Independent Expert on AlbinismBrigitte Alfred speaks for herself at the UN
The UN Human Rights office features Brigitte Alfred, a person with albinism sharing her own story in her own words.
Human RightsOHCHR — Independent Expert on AlbinismUN expert: albinism rights still face systemic barriers
The UN Independent Expert on Albinism says people with albinism continue to face conditions that prevent them from fully enjoying their human rights.
Africa FocusOHCHR — Independent Expert on AlbinismUN expert concludes landmark human rights visit to Malawi
Ikponwosa Ero, the UN Independent Expert on albinism, completed an eleven-day official visit to Malawi in April 2016, examining the rights and safety of people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN names its champions of the albinism cause
The Office of the UN High Commissioner for Human Rights has recognised a group of individuals working to protect the rights of people with albinism worldwide.
Health & Sun ProtectionOHCHR — Independent Expert on AlbinismWHO adds sunscreen to essential medicines list
The World Health Organization has listed sunscreen as an essential medicine, a decision UN experts say will improve access for people with albinism worldwide.
Real StoriesOHCHR — Independent Expert on AlbinismDavid Brodbeck shares his life with albinism
The UN Human Rights office profiles David Brodbeck, a person with albinism whose story is part of a broader effort to document real lives within the global community.
Human RightsOHCHR — Independent Expert on AlbinismUN marks first International Albinism Awareness Day
The United Nations used its first-ever International Albinism Awareness Day to call attention to the discrimination, violence, and social exclusion faced by people with albinism worldwide.
Human RightsOHCHR — Independent Expert on AlbinismUN expert on albinism to visit Pakistan in 2026
The UN Independent Expert on albinism will conduct an official visit to Pakistan from 3 to 12 June 2026, gathering testimony ahead of a formal human rights report.
Human RightsOHCHR — Independent Expert on AlbinismUN expert: people with albinism are not ghosts
The UN Independent Expert on Albinism has called for an end to dehumanising beliefs that treat people with albinism as supernatural. The statement urges recognition of full personhood and legal protection.
Human RightsOHCHR — Independent Expert on AlbinismUN issues reporting guide for children with albinism
The OHCHR Independent Expert on Albinism has released a guiding note on how journalists and organisations should report on children with albinism in Africa.
Human RightsOHCHR — Independent Expert on AlbinismOHCHR lists 27 communications on albinism rights
The UN human rights office has recorded 27 formal communications related to albinism. The cases span multiple countries and reflect ongoing concerns raised by the Independent Expert on Albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN report documents children with albinism in Gambia
A joint submission to the UN Committee on the Rights of the Child outlines the specific risks facing children with albinism in The Gambia.
Africa FocusOHCHR — Independent Expert on AlbinismUN warns of surge in attacks on children with albinism
The UN's Independent Expert on Albinism has reported a sharp rise in violent attacks against children with albinism in East Africa, describing the incidents as gravely alarming.
Human RightsOHCHR — Independent Expert on AlbinismMeet the UN's Independent Expert on albinism rights
Muluka-Anne Miti-Drummond holds the UN mandate dedicated to the human rights of people with albinism worldwide. Her role shapes international policy on the issue.
Human RightsOHCHR — Independent Expert on AlbinismUN Human Rights profiles Dr Shari Parker
The OHCHR Independent Expert on Albinism has spotlighted Dr Shari Parker as part of its People with Albinism series. The profile highlights her work and life on a global platform.
Health & Sun ProtectionAllAfrica — AlbinismNew shingles vaccine reaches South Africa, but cost is a barrier
Shingrix, a more effective shingles vaccine, is entering South Africa's private pharmacies — but public sector access remains unlikely in the near term.
Myths & FactsAllAfrica — AlbinismUganda minister urges early clubfoot treatment over witchcraft
Uganda's State Minister for Health called for community education on clubfoot, rejecting witchcraft explanations and urging early medical treatment for affected children.