Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyRegional Dermatology Training Center: A Beacon for Skin Health in Tanzania
The Regional Dermatology Training Center in Tanzania provides vital dermatologic care, education, and research serving people with albinism and other skin conditions.
Health & Sun ProtectionGoogle News — AlbinismGene-Edited Cane Toads Reveal New Insights About Albinism
Researchers use CRISPR technology on cane toads to better understand genetic mechanisms behind albinism, potentially offering insights for human applications.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Imaging Reveals Different Environments in Forms of Cutaneous T-cell Lymphoma
New research uncovers crucial differences in tumor environments for people with folliculotropic mycosis fungoides compared to the classic form.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Protein Markers for Early Detection of Skin Condition Affecting People with Albinism
Scientists investigate protein signatures that could help earlier diagnosis of mycosis fungoides, a skin condition that can present challenges for people with albinism.
Health & Sun ProtectionGoogle News — AlbinismFirst Documentation of Oculocutaneous Albinism Type I in Baka Community of Cameroon
Researchers document the first cases of Oculocutaneous Albinism Type I among the Baka community in Cameroon, adding important data to our understanding of albinism in Africa.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Identifies Key Protein Linked to Chronic Itching Without Obvious Cause
Scientists discover CCL3 protein may be responsible for persistent unexplained itching, offering potential new treatment pathways for this challenging condition.
Health & Sun ProtectionGoogle News — AlbinismNew Pig Models Advance Understanding of Oculocutaneous Albinism Type 1
Researchers develop groundbreaking pig models that closely mimic human OCA1, potentially accelerating vision research and treatment development.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Folliculin: The Connection Between a Rare Gene and Hair Growth
New research explores how the Birt-Hogg-Dubé syndrome gene affects hair follicle development, with potential implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyFolliculin: The Unexpected Growth Regulator in Human Hair Follicles
New research reveals folliculin may act as a molecular brake for hair growth, with potential implications for albinism-related hair development.
Health & Sun ProtectionGoogle News — AlbinismNew Hope for Children with Visual Impairments Related to Albinism
University of Southampton researchers discover promising vision improvement possibilities for young children with albinism through a specialized therapy approach.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Key Protein's Role in Skin Health for People with Albinism
Study reveals how a specific enzyme affects skin barrier function and inflammation, with potential implications for albinism-related skin concerns.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Links Obesity to Atopic Dermatitis Through Genetic Pathway
Scientists discover how obesity may influence skin inflammation through epigenetic modifications, with potential implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyRuxolitinib Cream Shows Promising Rapid Relief for Atopic Dermatitis and Itch
New research reveals how ruxolitinib cream quickly reduces atopic dermatitis symptoms, offering potential benefits for people with albinism who experience skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Highlights Immune Cell Connection to Skin Cancer in People with Albinism
Study reveals mast cells' role in squamous cell carcinoma development, potentially opening new treatment pathways for a cancer common in people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Mouse Model Offers Insights Into Psoriasis Genetic Risk Factors
Researchers develop transgenic mice to study HLA-C*06:02, the primary genetic risk factor for psoriasis, potentially advancing treatment options.
Health & Sun ProtectionJournal of Investigative DermatologyElectrical Impedance Spectroscopy Shows Promise for Melanoma Detection in Atypical Moles
New research explores how electrical impedance spectroscopy could help patients with atypical mole syndrome avoid unnecessary biopsies while improving early melanoma detection.
Health & Sun ProtectionAllAfrica — AlbinismThe Critical Connection: Substance Abuse, Mental Health, and Support for South Africans with Albinism
People with albinism face unique mental health challenges that can increase vulnerability to substance abuse. South Africa needs comprehensive, accessible support systems.
Health & Sun ProtectionPubMed — Albinism ResearchNew Study Explores the Genetics Behind Skin Pigmentation in African Populations
Researchers have made significant advances in understanding the molecular mechanisms that create the rich diversity of skin pigmentation across African populations.
Real StoriesReuters Health (Albinism via Google News)From Refugee to Olympian: Spanish Athlete with Albinism Competes for Paris Gold
After fleeing persecution in Mali, an athlete with albinism finds success and Olympic aspirations representing Spain on the international stage.
Human RightsGoogle News — AlbinismReimagining Albinism Rights Advocacy: A New Approach
Human Rights Watch highlights evolving strategies in albinism advocacy, focusing on human rights-based approaches rather than outdated charity models.