Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionAllAfrica — AlbinismGhana Halts US Health Deal Due to Data Privacy Concerns
Ghana has suspended talks on a bilateral healthcare agreement with the United States, citing concerns over sensitive data sharing requirements.
Health & Sun ProtectionJournal of Investigative DermatologyJak Inhibition with Narrow-Band UVB Light: A Promising Combination for Vitiligo Treatment
Recent research highlights how combining immune therapy with light treatment may offer better outcomes for vitiligo patients seeking repigmentation.
Health & Sun ProtectionAmerican Journal of Human GeneticsResearch identifies WDHD1 gene mutations linked to growth disorders
New genetic research has discovered WDHD1 gene variants associated with microcephalic primordial dwarfism, offering insights into rare growth disorders.
Health & Sun ProtectionGoogle News — AlbinismStudy: Children with Albinism Show Enhanced Visual Search Skills Despite Low Vision
New research reveals children with albinism demonstrate better visual search abilities compared to peers with other visual impairments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Retinoid Compound Shows Promise for UV Protection with Fewer Side Effects
Research reveals Hydroxypinacolone 9-cis retinoate may help prevent UV damage with less skin irritation than traditional retinoids.
Health & Sun ProtectionJournal of Investigative DermatologyGrowth Factor Found Essential for Hair Maintenance During Aging
Research reveals that loss of TGFα leads to severe hair loss in aging mice, with implications for understanding human hair disorders.
Health & Sun ProtectionJournal of Investigative DermatologyNew Imaging Techniques Reveal Skin Blood Vessel Dynamics in Mice
Researchers develop methods to visualize vascular networks in skin, offering potential insights for people with albinism's skin health management.
Health & Sun ProtectionJournal of Investigative DermatologyNew Techniques for Studying Skin Cell Movement in Albinism Research
Dermatology researchers outline improved methods for analyzing keratinocyte migration, which could advance understanding of skin development in albinism.
Human RightsGoogle News — AlbinismUN Expert Urges Portugal to Strengthen Protection for People with Albinism
A UN Independent Expert has called for Portugal to improve protective measures for persons with albinism, addressing gaps in healthcare and discrimination.
Health & Sun ProtectionGoogle News — AlbinismDocumentary Explores Fiji's Unusually High Prevalence of Albinism
A new film investigates why Fiji has a higher-than-average rate of albinism, bringing attention to the unique challenges and experiences of this Pacific island community.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Maps Itch Pathways in Human Nervous System: Implications for Skin Conditions
Scientists analyze neural pathways behind itch sensation, offering potential new treatments for skin conditions affecting people with albinism.
Human RightsGoogle News — AlbinismTanzania's Elections Raise Safety Concerns for People with Albinism
As Tanzania prepares for elections, people with albinism face heightened anxiety and security concerns due to historical violence linked to political seasons.
Health & Sun ProtectionJournal of Investigative DermatologyPotential Relief for Skin Symptoms in Dermatomyositis: New Cannabinoid Treatment Study
Research suggests lenabasum, a non-psychoactive cannabinoid, may help reduce inflammation in dermatomyositis, a condition affecting people with albinism.
Health & Sun ProtectionGoogle News — AlbinismWHO Adds Sunscreen to Essential Medicines List, Major Win for Albinism Community
People with albinism in East Africa celebrate WHO's landmark decision to include sunscreen as an essential medicine, improving access to vital skin protection.
Human RightsUN General Assembly NewsUN Forms Task Force to Address Growing Humanitarian Crisis in the Middle East
The United Nations has established a new task force to respond to worsening conditions as conflict in the Middle East intensifies, causing widespread suffering.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesNew Information System Improves Rare Disease Research for Conditions Like Albinism
The RaDiCo platform brings new hope for rare disease communities by enhancing how researchers collect and analyze data, potentially accelerating treatments.
Human RightsGoogle News — AlbinismColorism in India: How Bias Affects People with Albinism
Despite genetic science proving otherwise, people with albinism in India still face discrimination rooted in colorism and misunderstanding about their condition.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Affirm: Social Media Freedom Doesn't Include Racial Hatred Against Persons with Albinism
UN human rights experts warn that freedom of expression has limits when it comes to spreading racial hatred against marginalized groups on social media platforms.
Human RightsGoogle News — AlbinismTanzanians with albinism receive life-changing prosthetics in New Jersey program
Survivors of violence from Tanzania find new mobility and hope through specialized prosthetics program in New Jersey, highlighting both challenges and resilience.
Human RightsAllAfrica — AlbinismZimbabwe Faces Health Crisis: Community Health Group Calls for Urgent Investment
Health advocates warn about growing public health threats in Zimbabwe and call for improved protections for healthcare workers.