Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsGoogle News — AlbinismHeightened vulnerability of people with albinism during COVID-19 pandemic
Amnesty International highlights unique challenges faced by people with albinism across Southern Africa during the COVID-19 crisis
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Evaluates Racial Discrimination Concerns in Six Countries, Including Albinism Issues
The Committee on the Elimination of Racial Discrimination has published findings on Croatia, Italy, Namibia, Senegal, Turkmenistan, and Uruguay, with significant implications for albinism rights.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Psoriasis: New Research Sheds Light on Genetic Links to Skin Condition
Research from the Journal of Investigative Dermatology explores how genetics may influence psoriasis, with implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Uncovers Key Protein's Role in Human Hair Growth Cycle
Scientists have identified how a specific protein may influence the human hair growth cycle, potentially offering insights for albinism-related hair development.
Health & Sun ProtectionJournal of Investigative DermatologyJAK Inhibitors Show Promise in Treating Pyoderma Gangrenosum, a Painful Skin Condition
Recent research explores how baricitinib, a JAK inhibitor, may offer new treatment options for painful skin ulcerations in pyoderma gangrenosum.
Health & Sun ProtectionReuters Health (Albinism via Google News)Tanzanian Children with Albinism Receive Prosthetic Limbs in U.S. Medical Program
Children with albinism who survived attacks in Tanzania are receiving medical care and prosthetic limbs through a specialized program in the United States.
Health & Sun ProtectionAmerican Journal of Human GeneticsResearch identifies ultra-rare genetic variants linked to early-onset breast cancer
New study reveals genetic pathways associated with early-onset breast cancer risk across diverse populations, offering potential insights for the albinism community.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Immune Patterns in Rare Skin Condition Affecting People with Albinism
New research illuminates how a severe form of leishmaniasis creates immunosuppressive environments in skin tissue, offering insight for better treatment approaches.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Examines UVB Therapy Effects on Vitiligo Progression Through Skin Cell Changes
New research reveals how high-dose narrowband UVB therapy might potentially affect vitiligo progression by impacting dermal fibroblast cells.
Health & Sun ProtectionJournal of Investigative DermatologyRisk of Second Melanomas: Insights from 40-Year Queensland Study
New research reveals 9% of melanoma patients develop a second primary invasive cutaneous melanoma, highlighting the importance of continued skin monitoring.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Uncovers Key Genetic Differences Between Tanning and Sunburn Responses
New research reveals distinct genetic factors influence tanning ability versus sunburn susceptibility, offering important insights for people with albinism and skin cancer prevention.
Health & Sun ProtectionJournal of Investigative DermatologyNew Peptide Shows Promise for Treating Skin Lymphoma Associated with Albinism
Research reveals a potential treatment targeting immune cells in cutaneous T-cell lymphoma, a skin cancer that can affect people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Genetic Patterns in Sézary Syndrome, a Condition Affecting Skin and Immunity
Research published in the Journal of Investigative Dermatology explores genetic complexity of Sézary syndrome, potentially opening paths for targeted treatments.
Health & Sun ProtectionJournal of Investigative DermatologyBreakthrough Study Shows How Targeted Therapies Affect Skin Immune Cells in Atopic Dermatitis
New research reveals how two treatments for atopic dermatitis, a condition common among people with albinism, impact immune cell activity in the skin.
Health & Sun ProtectionJournal of Investigative DermatologyBreakthrough in Sun Protection: New Bioadhesive UV Filter Shows Promise
A new UV filter called M10 could provide longer-lasting sun protection, potentially benefiting those with albinism who require rigorous photoprotection.
Human RightsUNHCR AfricaRefugee With Albinism Shares Story of Resilience and Advocacy Against Discrimination
Joy, a refugee with albinism, speaks out about her experiences facing discrimination and her journey toward becoming an advocate for others.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Potential Melanoma Biomarker Relevant to Skin Cancer Detection
A recent study investigates blood-based DNA fragments as potential melanoma biomarkers, which could benefit early detection efforts in at-risk populations.
Health & Sun ProtectionJournal of Investigative DermatologyHow Blue Light Exposure May Impact Skin Health for People with Albinism
New research reveals blue light's potential to disrupt skin barrier function, raising important considerations for people with albinism who need extra skin protection.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Reflects on Progress and Challenges in Protecting People with Albinism
The UN Independent Expert on Albinism has released a comprehensive report highlighting key achievements, ongoing challenges, and future priorities for the mandate.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals MITF's Role in Melanocyte Regulation: Implications for Albinism
Recent findings on the MITF transcription factor offer new insights into melanocyte function and potential pathways for understanding albinism.