Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionGoogle News — AlbinismScientists Uncover Molecular Mechanism Behind Rare Form of Albinism
New research published in Nature reveals the underlying mechanism of oculocutaneous albinism type 7, offering potential pathways for future treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Underlying Causes of Rare Sweat Gland Disorder
Journal study sheds light on acquired idiopathic generalized anhidrosis, a rare condition affecting sweat production that impacts some people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Shows Promise for Treating Diabetic Wounds with Inflammation Boosters
Researchers discover a potential therapy that could improve healing in diabetic wounds by addressing early inflammation deficiencies.
Health & Sun ProtectionGoogle News — AlbinismClimate Change Amplifies Health Challenges for People with Albinism
A new report highlights how climate change creates additional health risks for people with albinism, compounding existing discrimination and access barriers.
Health & Sun ProtectionGoogle News — AlbinismUnderstanding Pigment Loss in Birdshot Chorioretinitis: New Research Insights
Recent research explores the connection between Birdshot chorioretinitis and pigmentation changes that mimic albinism symptoms in the eye.
Health & Sun ProtectionAllAfrica — AlbinismNew Diabetes Dashboard Could Improve Care for South Africans with Albinism
South Africa's new diabetes monitoring system might benefit people with albinism who face increased diabetes risk alongside their visual and skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research: Skin Cancer Prevention Breakthrough for Individuals with Albinism
A VA study shows 5-fluorouracil cream reduces skin cancer risk by 75% in high-risk individuals, offering promising options for people with albinism.
Health & Sun ProtectionAllAfrica — AlbinismUganda's Ntungamo District Faces Rising HIV and TB Rates Above National Average
Ntungamo District in Uganda is experiencing concerning health trends with HIV prevalence reaching 6%, surpassing the national average of 5.1%.
Health & Sun ProtectionJournal of Investigative DermatologySleep Disruption and Genetic Factors May Influence Psoriasis Risk, Study Finds
New research reveals potential connections between sleep patterns, genetics, and psoriasis development—findings with relevance for skin health in albinism.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Among Top 10 Countries with Highest Hepatitis B Mortality Rates
A new WHO report identifies Nigeria as one of ten countries accounting for nearly 70% of global Hepatitis B deaths, highlighting health challenges affecting all communities.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Launches Nationwide Youth Health Competition to Combat Malaria
The Nigerian government has approved a nationwide youth-focused initiative to strengthen malaria prevention efforts across all states.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert on Albinism to Make First Official Visit to Portugal in November 2025
The United Nations Independent Expert on albinism will conduct an official country visit to Portugal in November 2025 to assess human rights conditions.
Health & Sun ProtectionJournal of Investigative DermatologyThe Science Behind Scratching and Tickling: What It Means for Skin Sensitivity
New dermatological research reveals the neurobiological connections between scratching and tickling sensations, with implications for people with albinism's skin care.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals How Facial Skin Ages and Sags - Implications for Understanding Albinism
Recent dermatology research offers insights into how facial skin changes with age, with potential relevance for skin care in people with albinism.
Health & Sun ProtectionGoogle News — AlbinismNew App Launches to Support People with Albinism Worldwide
Nature reports on a new mobile application designed to provide essential resources and support to people with albinism globally.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Key Protein Driving Excessive Collagen in Keloid Scars
Research identifies RUNX2 as a potential treatment target for keloid scars, which disproportionately affect people with darker skin tones, including those with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Melanoma Cell Changes: New Research on Phenotype Switching and MITF
Recent findings reveal how melanoma cells change behavior to evade treatment, with implications for people with albinism who face higher skin cancer risks.
Human RightsOHCHR — Independent Expert on AlbinismAfrican Court Holds Tanzania Accountable for Failing to Protect People with Albinism
Historic ruling acknowledges Tanzania's failure to protect the rights of people with albinism, marking a significant legal precedent in Africa.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Genetic Links Between Albinism and Other Conditions
New research explores possible genetic connections between albinism, acne vulgaris, and inflammatory bowel disease, suggesting shared biological pathways.
Health & Sun ProtectionJournal of Investigative DermatologyThyroid Hormone Regulation Study Reveals Potential Target in Skin Cancer Treatment
Research identifies a key enzyme in cancer stem cells that may offer new treatment pathways for basal cell carcinoma, a common skin cancer.