Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyNew Gene-Editing Models Offer Hope for Albinism and Other Rare Skin Conditions
Advanced DNA-editing technologies are creating pathways to potential treatments for inherited skin conditions that have long lacked therapeutic options.
Human RightsOHCHR — Independent Expert on AlbinismClimate Change Poses Heightened Risks for Persons with Albinism, UN Expert Reports
New UN report reveals how climate change disproportionately affects persons with albinism through increased UV exposure, displacement, and healthcare disruptions.
Human RightsOHCHR — Independent Expert on AlbinismUN Seeks Input on Guidelines for Addressing Discrimination Against Women with Albinism
The UN's Independent Expert on Albinism is calling for submissions to shape guidelines addressing discrimination faced by women and girls with disabilities.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Mycosis Fungoides: The Lymphoma That Mimics Skin Conditions
New research reveals mycosis fungoides is a lymphoma that imitates inflammatory skin conditions, not the other way around, with implications for albinism care.
Human RightsOHCHR — Independent Expert on AlbinismA Decade of Awareness: Progress and Challenges for People with Albinism
As International Albinism Awareness Day marks its 10th anniversary, significant progress has been made, but challenges to full equality remain.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals How Skin Architecture Influences Cell Behavior in Albinism
Study examining tissue structures may provide insights into how skin and oral mucosa organize cells differently in people with albinism.
Human RightsGoogle News — AlbinismUN Calls for Global Solidarity with Persons with Albinism on International Awareness Day
The United Nations highlights the importance of recognition, celebration, and solidarity with persons with albinism worldwide.
Human RightsGoogle News — AlbinismUrgent Action Needed: The Trade in Body Parts of People with Albinism Continues
Dangerous myths and insufficient international response fuel the ongoing human rights crisis affecting people with albinism in parts of Africa.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Seeks Global Input on Employment Rights for People with Albinism
The UN Independent Expert on Albinism launches a call for input on employment barriers and best practices to promote workplace inclusion and equality.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts: Armed Conflicts Threaten Rights of Persons with Albinism and Other Disabilities
UN Independent Expert on Albinism joins other experts in highlighting heightened vulnerabilities of persons with disabilities during armed conflicts.
Human RightsOHCHR — Independent Expert on AlbinismWitchcraft-related attacks on people with albinism increased during pandemic, UN expert reports
The UN Independent Expert on Albinism has documented a concerning rise in attacks on people with albinism during COVID-19, linked to witchcraft beliefs.
Health & Sun ProtectionJournal of Investigative DermatologySkin Cell Research Routinely Overlooks Sex Differences — Why It Matters for Albinism
Medical researchers are reexamining how sex differences affect skin biology, with potential implications for albinism treatment approaches.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Proteomics Offers New Insights into Rare Skin Disorder, May Aid Albinism Research
A breakthrough proteomics study of pachyonychia congenita reveals detailed protein changes in skin cells, potentially benefiting other genetic skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyKiwifruit Consumption Boosts Skin Vitamin C Levels, Improving Skin Health
New research shows that adding kiwifruit to your diet may naturally enhance skin vitamin C levels and improve overall skin function.
Health & Sun ProtectionAmerican Journal of Human GeneticsStudy Reveals Genetic Link Between Neurodevelopment and Health Conditions
New research shows certain genetic variants may increase risk of both mental health and heart-related conditions, with implications for comprehensive care.
Health & Sun ProtectionGoogle News — AlbinismNew Research Maps Genetic Variants in Oculocutaneous Albinism Among 28 Families
Scientists identify important genetic patterns in families with oculocutaneous albinism, including a significant deep intron variant in the TYR gene.
Health & Sun ProtectionJournal of Investigative DermatologySkin Imaging Innovations: What New Melanoma Detection Technologies Mean for Albinism Care
A review of emerging skin imaging technologies shows promise for melanoma detection, with important implications for skin health monitoring in people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Project Supports Human Rights Protection for People with Albinism in Mozambique
An evaluation of the OHCHR project in Mozambique reveals progress in advancing human rights protections for people with albinism amid ongoing challenges.
Human RightsOHCHR — Independent Expert on AlbinismClimate Change and Albinism: UN Experts Call for Human Rights-Centered Action at COP29
UN experts, including the Independent Expert on Albinism, urge nations at COP29 to prioritize human rights in climate policies to protect vulnerable groups.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Completes Landmark Human Rights Assessment for People with Albinism in Panama
The UN Independent Expert on albinism conducted an official visit to Panama to evaluate human rights conditions and protections for people with albinism.