Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsGoogle News — AlbinismMadagascar: New Coordination Effort Empowers Persons with Albinism Through Human Rights
The UN's initiative in Madagascar strengthens human rights protections for persons with albinism through improved coordination across key stakeholders.
Human RightsOHCHR — Independent Expert on AlbinismOHCHR Report Highlights Progress and Persistent Challenges for People with Albinism
The UN Independent Expert's latest report on albinism reveals important advancements in human rights protection while noting ongoing barriers to equality.
Human RightsUN General Assembly NewsMiddle East Crisis: What UN General Assembly Reports Mean for Vulnerable Communities
As conflict intensifies in the Middle East, Albino Voices examines the humanitarian situation and its potential impact on communities with albinism in the region.
Human RightsReuters Health (Albinism via Google News)Rare Albino Elephant Thriving in South African Herd Shows Nature's Resilience
A young albino elephant in South Africa's Kruger National Park is defying the odds, showing how animals with albinism can thrive with proper protection.
Human RightsOHCHR — Independent Expert on AlbinismGuinea's Human Rights Progress on Albinism Reviewed by UN Independent Expert
UN Independent Expert on Albinism reviews Guinea's progress in protecting people with albinism as part of the Universal Periodic Review process.
Human RightsUN General Assembly NewsUN AI Panel Begins Global Impact Study With Focus on Human Rights for All
The UN's Independent International Scientific Panel on Artificial Intelligence prepares for its first summit, emphasizing inclusive human rights considerations.
Human RightsAllAfrica — AlbinismNigerian Medical Association Challenges Court Ruling on Alleged Medical Negligence Case
The Nigerian Medical Association (NMA) has announced plans to appeal a court decision related to medical care in a case that may impact healthcare standards.
Human RightsOHCHR — Independent Expert on AlbinismUN Human Rights Council Session to Highlight Progress on Protecting People with Albinism
The upcoming UN Human Rights Council session will discuss various human rights issues, including recent advocacy work for people with albinism globally.
Human RightsGoogle News — AlbinismUN Spotlight: Human Rights Protections for People with Albinism
The United Nations highlights ongoing human rights challenges and protections for people with albinism worldwide, emphasizing the need for continued advocacy.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Seeks Input on Disability Rights Guidelines Affecting People with Albinism
The Committee on the Rights of Persons with Disabilities is developing guidelines on deinstitutionalization that may impact people with albinism.
Human RightsUN General Assembly NewsUN Chief Calls for Peaceful Resolution as Middle East Conflict Affects Civilians
As tensions escalate in the Middle East, UN Secretary-General urges for peaceful resolution while highlighting the devastating impact on civilian populations.
Human RightsUN General Assembly NewsThe UN Housing Development that Challenged Segregation in 1940s America
In 1947, Parkway Village was built for UN staff in New York, becoming a pioneering model that helped break down racially segregated housing in America.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Call for Climate Justice at COP30, Recognizing Impact on Vulnerable Communities
UN human rights experts urge COP30 to embrace rights-based climate action, highlighting protection needs for marginalized communities including people with albinism.
Human RightsAllAfrica — AlbinismGhana: Mental Health Advocate Calls for Greater Awareness in May
Stigma surrounding mental health in Ghana persists. Advocate Betty Elikem Azornu urges open conversations to support people with albinism and others facing mental health challenges.
Human RightsAllAfrica — AlbinismHealthcare Reforms in Zimbabwe: Potential Impact on People with Albinism
Proposed changes to Zimbabwe's medical aid regulations could impact healthcare access for vulnerable populations, including people with albinism.
- Human RightsUN OHCHR — Independent Expert on Albinism
UN independent expert calls for a global albinism rights agenda at the Human Rights Council
The UN Independent Expert presented a landmark report calling for a dedicated global agenda to protect the human rights of persons with albinism.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Africa FocusUN OHCHR — Independent Expert on Albinism
Malawi parliament passes landmark Persons with Albinism Protection Bill
Malawi has passed a landmark protection bill, making it one of the first countries in sub-Saharan Africa to enact dedicated legislation criminalising attacks on persons with albinism.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Real StoriesNOAH — National Organization for Albinism and Hypopigmentation
NOAH 2026 conference brings together 900 people with albinism from 38 countries
The NOAH 2026 conference in Atlanta drew nearly 900 attendees from 38 countries, marking the largest gathering in the organisation's history, with sessions on health, rights, and international advocacy.
