Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionGoogle News — AlbinismNew Pig Models Advance Understanding of Oculocutaneous Albinism Type 1
Researchers develop groundbreaking pig models that closely mimic human OCA1, potentially accelerating vision research and treatment development.
Health & Sun ProtectionGoogle News — AlbinismFirst Documentation of Oculocutaneous Albinism Type I in Baka Community of Cameroon
Researchers document the first cases of Oculocutaneous Albinism Type I among the Baka community in Cameroon, adding important data to our understanding of albinism in Africa.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Protein Markers for Early Detection of Skin Condition Affecting People with Albinism
Scientists investigate protein signatures that could help earlier diagnosis of mycosis fungoides, a skin condition that can present challenges for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals MITF's Role in Melanocyte Regulation: Implications for Albinism
Recent findings on the MITF transcription factor offer new insights into melanocyte function and potential pathways for understanding albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Reflects on Progress and Challenges in Protecting People with Albinism
The UN Independent Expert on Albinism has released a comprehensive report highlighting key achievements, ongoing challenges, and future priorities for the mandate.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Potential Melanoma Biomarker Relevant to Skin Cancer Detection
A recent study investigates blood-based DNA fragments as potential melanoma biomarkers, which could benefit early detection efforts in at-risk populations.
Human RightsUNHCR AfricaRefugee With Albinism Shares Story of Resilience and Advocacy Against Discrimination
Joy, a refugee with albinism, speaks out about her experiences facing discrimination and her journey toward becoming an advocate for others.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Genetic Patterns in Sézary Syndrome, a Condition Affecting Skin and Immunity
Research published in the Journal of Investigative Dermatology explores genetic complexity of Sézary syndrome, potentially opening paths for targeted treatments.
Health & Sun ProtectionJournal of Investigative DermatologyRisk of Second Melanomas: Insights from 40-Year Queensland Study
New research reveals 9% of melanoma patients develop a second primary invasive cutaneous melanoma, highlighting the importance of continued skin monitoring.
Health & Sun ProtectionJournal of Investigative DermatologyJAK Inhibitors Show Promise in Treating Pyoderma Gangrenosum, a Painful Skin Condition
Recent research explores how baricitinib, a JAK inhibitor, may offer new treatment options for painful skin ulcerations in pyoderma gangrenosum.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Uncovers Key Protein's Role in Human Hair Growth Cycle
Scientists have identified how a specific protein may influence the human hair growth cycle, potentially offering insights for albinism-related hair development.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Evaluates Racial Discrimination Concerns in Six Countries, Including Albinism Issues
The Committee on the Elimination of Racial Discrimination has published findings on Croatia, Italy, Namibia, Senegal, Turkmenistan, and Uruguay, with significant implications for albinism rights.
Human RightsGoogle News — AlbinismHeightened vulnerability of people with albinism during COVID-19 pandemic
Amnesty International highlights unique challenges faced by people with albinism across Southern Africa during the COVID-19 crisis
Human RightsOHCHR — Independent Expert on AlbinismAfrican Court Holds Tanzania Accountable for Failing to Protect People with Albinism
Historic ruling acknowledges Tanzania's failure to protect the rights of people with albinism, marking a significant legal precedent in Africa.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Key Protein Driving Excessive Collagen in Keloid Scars
Research identifies RUNX2 as a potential treatment target for keloid scars, which disproportionately affect people with darker skin tones, including those with albinism.
Health & Sun ProtectionGoogle News — AlbinismNew App Launches to Support People with Albinism Worldwide
Nature reports on a new mobile application designed to provide essential resources and support to people with albinism globally.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Launches Nationwide Youth Health Competition to Combat Malaria
The Nigerian government has approved a nationwide youth-focused initiative to strengthen malaria prevention efforts across all states.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Among Top 10 Countries with Highest Hepatitis B Mortality Rates
A new WHO report identifies Nigeria as one of ten countries accounting for nearly 70% of global Hepatitis B deaths, highlighting health challenges affecting all communities.
Health & Sun ProtectionAllAfrica — AlbinismUganda's Ntungamo District Faces Rising HIV and TB Rates Above National Average
Ntungamo District in Uganda is experiencing concerning health trends with HIV prevalence reaching 6%, surpassing the national average of 5.1%.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research: Skin Cancer Prevention Breakthrough for Individuals with Albinism
A VA study shows 5-fluorouracil cream reduces skin cancer risk by 75% in high-risk individuals, offering promising options for people with albinism.