Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Genetic Discovery Reveals Link Between Mitochondrial Complex I and Albinism
Researchers identify genetic variants connected to mitochondrial function that may provide insight into certain forms of albinism with multisystem effects.
Health & Sun ProtectionJournal of Investigative DermatologyHow Biosimilar Drugs Could Expand Treatment Access for People with Albinism and Psoriasis
Research suggests biosimilar medications may offer comparable treatment at lower costs, potentially improving access for people with albinism who develop psoriasis.
Health & Sun ProtectionAmerican Journal of Human GeneticsUnderstanding Cis-Mendelian Randomization: New Research Approach with Potential for Albinism Studies
Researchers outline a promising genetic research method that could advance our understanding of albinism's biological mechanisms and potential treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Vitiligo's Complex Impact on Over 5,000 Chinese Patients
Research in the Journal of Investigative Dermatology provides fresh insights into vitiligo's physical and psychological effects beyond skin depigmentation.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Brings Hope for Odor Associated with Nagashima-type Palmoplantar Keratosis
Researchers discover microbial imbalances may cause distinctive foot odor in this genetic condition common in East Asia, with topical treatment showing promise.
Health & Sun ProtectionGoogle News — AlbinismNew Global Initiative Aims to Secure Health and Wellbeing for Children with Albinism
The Lancet highlights important efforts to improve health outcomes and support for children with albinism worldwide through comprehensive approaches.
Health & Sun ProtectionJournal of Investigative DermatologyBiologics May Impact Mental Health Outcomes in Hidradenitis Suppurativa Patients
Recent research explores the relationship between biological therapy and mental health in people with hidradenitis suppurativa, a chronic inflammatory skin condition.
Health & Sun ProtectionGoogle News — AlbinismPromising Treatment Could Restore Visual Function in Albinism, Study Shows
Researchers have discovered that L-DOPA treatment may rescue retinal development and improve vision in a mouse model of albinism, offering hope for future therapies.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Skin HPVs and Their Possible Health Effects for People with Albinism
New research explores how common skin viruses interact with immune systems and UV exposure – important insights for the albinism community.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Shows Promise for Atopic Dermatitis Patients with Skin Pigmentation Concerns
Rocatinlimab, targeting the OX40 receptor on T-cells, demonstrates improvement in moderate-to-severe atopic dermatitis in phase 3 trials.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Imaging Reveals How Skin Cells Maintain Adhesion Under Stress
New research illuminates how desmoplakin proteins respond to mechanical stress in skin cells, with implications for rare skin conditions including those affecting people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyBiologics May Improve Mental Health for Those with Hidradenitis Suppurativa
New research explores how treatments for hidradenitis suppurativa may benefit both skin and mental health outcomes for patients living with this condition.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Guidelines for Interpreting PALB2 Gene Variants in Albinism and Other Conditions
Specialized guidelines for PALB2 gene analysis have been established by genetics experts, potentially improving diagnosis for certain forms of albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Role of Skin Cells in Rabies Transmission
Dermatology study examines how rabies virus interacts with human skin cells, offering insights that may benefit vulnerable populations with skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Advances Understanding of Human Hair Follicle Genetics
Researchers use innovative techniques to map gene expression in human hair follicles, creating potential pathways for future albinism-related research.
Health & Sun ProtectionReuters Health (Albinism via Google News)Sisters with Albinism Navigate Rome's Extreme Heat with Extra Precautions
How two teenage sisters with albinism are managing the intense summer temperatures in Rome while protecting their sensitive skin.
Real StoriesGoogle News — AlbinismSinger, Police Officer, and Netflix Star: Celebrating a Voice Against Albinism Stigma
A remarkable individual with albinism breaks barriers as a musician, law enforcement officer, and now inspiration for a powerful Netflix film highlighting albinism in Africa.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Urges Stronger Action on Human Rights for Persons with Albinism
UN Independent Expert on Albinism calls for increased state efforts to address human rights challenges still faced by the albinism community worldwide.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Maps Itch Pathways in Human Nervous System: Implications for Skin Conditions
Scientists analyze neural pathways behind itch sensation, offering potential new treatments for skin conditions affecting people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyGrowth Factor Found Essential for Hair Maintenance During Aging
Research reveals that loss of TGFα leads to severe hair loss in aging mice, with implications for understanding human hair disorders.