Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Immune Patterns in Rare Skin Condition Affecting People with Albinism
New research illuminates how a severe form of leishmaniasis creates immunosuppressive environments in skin tissue, offering insight for better treatment approaches.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals How Facial Skin Ages and Sags - Implications for Understanding Albinism
Recent dermatology research offers insights into how facial skin changes with age, with potential relevance for skin care in people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyBreakthrough in Understanding Hair and Sweat Gland Development Relevant for Albinism
New research identifies key proteins that regulate skin appendage formation, offering insights into hair loss and sweat gland development relevant to albinism care.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Keloid Development and Therapeutic Avenues for Skin of Color
A dermatology study reveals new insights into keloid formation with potential treatment implications for those with albinism and darker skin tones.
Health & Sun ProtectionJournal of Investigative DermatologyCreating Equitable Pathways for Indigenous Australian Skin Health
A new study highlights the need to address structural inequities in dermatological care for Indigenous Australians while building a more representative workforce.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research on Mycosis Fungoides in Skin of Color Patients Reveals Potential for Earlier Diagnosis
Recent dermatology research identifies biomarkers that could improve detection of skin lymphoma in patients with darker skin tones, potentially reducing misdiagnosis.
Health & Sun ProtectionJournal of Investigative DermatologyBreakthrough in Predicting Atopic Dermatitis Before Symptoms Appear
New research identifies biomarkers that could predict atopic dermatitis onset before visible symptoms, offering hope for earlier interventions.
Health & Sun ProtectionJournal of Investigative DermatologyA Note to Our Readers: Journal of Investigative Dermatology Reference
Our reference to the Journal of Investigative Dermatology's Editorial Board is currently unavailable. We look forward to bringing you complete content soon.
Health & Sun ProtectionJournal of Investigative DermatologyNew Psoriasis Treatment May Reduce Cardiovascular Risk Markers in Albinism Patients
Recent research suggests deucravacitinib might lower inflammatory biomarkers linked to heart health in patients with psoriasis, which impacts many with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew 'Touch-Based' Technology Could Revolutionize Skin Assessment for People with Albinism
Researchers have developed digital tools that measure skin characteristics through touch, potentially improving care for those with albinism-related skin conditions.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Prime Editing Platform Shows Promise for Albinism Treatment
Researchers report proof-of-concept studies for a customizable genetic editing platform that could potentially treat albinism and other genetic conditions.
Health & Sun ProtectionGoogle News — AlbinismClimate Change Threatens Health of Persons with Albinism, Georgetown Study Warns
New research highlights how climate change disproportionately affects people with albinism through increased skin cancer risk and vision challenges.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Immune System Activity in Female Pattern Hair Loss
Research suggests previously unrecognized immune system involvement in female pattern hair loss, potentially opening doors for new treatments.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Peristomal Pyoderma Gangrenosum: A Skin Condition Impacting Quality of Life
Research highlights the challenges faced by patients with peristomal pyoderma gangrenosum, a rare skin condition that requires better recognition and treatment.
Health & Sun ProtectionAlbinism Life Podcast (Albinism Fellowship UK)Understanding Nystagmus and Albinism: Expert Insights
Dr. Jay Self explains the relationship between nystagmus and albinism, impact on vision, and available treatment options.
Health & Sun ProtectionGoogle News — AlbinismResearch Highlights Rare Color Variations in Barn Owls and Their Implications
A study examining albinism, leucism, and melanism in barn owls sheds light on these rare genetic conditions in birds and their potential relevance to human albinism.
Health & Sun ProtectionJournal of Investigative DermatologyAI Advancements Show Promise for Vitiligo and Other Inflammatory Skin Conditions
New research highlights how artificial intelligence is transforming diagnosis and treatment options for people with vitiligo and related skin conditions.
Health & Sun ProtectionAllAfrica — AlbinismKenya's Social Health Authority: What Universal Coverage Means for People with Albinism
Kenya's new Universal Health Coverage plan under the Social Health Authority could offer crucial healthcare access for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyBeyond Structure: The Expanding Role of Skin Fibroblasts in Health and Disease
New research reveals skin fibroblasts do more than provide structure—they actively influence immune response, with implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Melanoma Risk in Individuals with Albinism: New Genetic Insights
Research reveals complex genetic factors behind multiple melanomas in patients without known high-risk genes, offering potential insights for people with albinism.