Archive
Health & Sun Protection
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Sheds Light on Keloid Treatment Response in Skin Conditions
Study examines how immune cells predict treatment response in keloid scars, offering hope for improved therapies for people with albinism prone to scarring.
Health & Sun ProtectionGoogle News — AlbinismResearchers Document Rare Albinism in New Zealand Fur Seal Pup Through Weaning Period
Scientists have published a rare and valuable record of albinism in a New Zealand fur seal pup, offering insights into how the condition affects marine mammals.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Immune Checkpoint Inhibitors in Melanoma Treatment
A recent study examines how blocking specific immune suppressors may help melanoma patients achieve longer-lasting treatment responses.
Health & Sun ProtectionJournal of Investigative DermatologyComparing the Psychological Impact of Vitiligo Across Western and South Asian Cultures
New research examines how cultural context influences the psychological burden of vitiligo, finding significant differences between Western and South Asian experiences.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Health & Sun ProtectionReuters Health
Study maps critical gap in dermatology access for persons with albinism across East Africa
A new study finds fewer than 15% of persons with albinism across six East African countries have ever seen a dermatologist, mapping a critical gap in preventable skin cancer care.
- Health & Sun ProtectionAssociação Brasil Albinismo
New Brazilian survey maps the everyday needs of people with albinism
A nationwide survey by Associação Brasil Albinismo finds that access to sunscreen, low-vision services, and school accommodations remains deeply uneven across regions.
