Archive
Health & Sun Protection
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Health & Sun ProtectionJournal of Investigative DermatologyLipidomics-Based Skin Analysis Shows Promise for Melanoma Diagnostics
New research from the Journal of Investigative Dermatology explores how lipid profiling and machine learning may improve melanoma diagnosis.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Skin Reactions to Cancer Treatments: New Insights for People with Albinism
Research reveals how cancer immunotherapies can trigger skin reactions - important information for people with albinism who may need these treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Hope for Aggressive Skin Cancer in Rare Skin Condition
Researchers identify promising drug candidate for treatment of aggressive skin cancers associated with recessive dystrophic epidermolysis bullosa.
Health & Sun ProtectionReuters Health (Albinism via Google News)WHO Essential Medicines List Update: What It Means for People with Albinism
The WHO has updated its Essential Medicines List, which includes important medications for conditions related to albinism care. Here's what you need to know.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Illuminates Hair Follicle Stem Cell Communication in Skin
Study reveals deeper understanding of cell communication in hair follicles, with potential implications for albinism-related skin and hair development.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Explores Connection Between Itch Scales and Immune Markers in Atopic Dermatitis
New research examines how different itch measurement tools correlate with immune markers in people with atopic dermatitis, with potential insights for albinism-related skin conditions.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesStudy Reveals Critical Gaps in Rare Disease Knowledge Among Chinese Emergency Physicians
New research highlights the urgent need for improved education about rare diseases, including albinism, for emergency medical professionals in China.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Health & Sun ProtectionReuters Health
Study maps critical gap in dermatology access for persons with albinism across East Africa
A new study finds fewer than 15% of persons with albinism across six East African countries have ever seen a dermatologist, mapping a critical gap in preventable skin cancer care.
- Health & Sun ProtectionAssociação Brasil Albinismo
New Brazilian survey maps the everyday needs of people with albinism
A nationwide survey by Associação Brasil Albinismo finds that access to sunscreen, low-vision services, and school accommodations remains deeply uneven across regions.
